Surprising absolutely no one who follows the history of intersex treatment in the United States, BBC Radio 4 has a recent story about the history of intersex treatment in the UK with the provocative headline “Intersex Patients ‘Routinely Lied To By Doctors’.” The article is in the past tense, taking a historical view:
Ieuan Hughes, emeritus professor of paediatrics at the University of Cambridge and an expert in hormone disorders, says cover-ups used to be routine in cases such as this.
“In those days the consensus in the medical profession was that the truth would not be disclosed to the patient… and the general advice was for parents not to disclose the true diagnoses to the children.
The article does also address modern practice guidelines, which is increasingly in line with what
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General Medical Council chief executive Charlie Massey said: “Medical practice has evolved dramatically over the last 50 years, with more and more emphasis on working in partnership with patients, openly and honestly.
“Our guidance makes it clear doctors should involve children and young people as much as possible in discussions about their care, even if they are not able to make decisions on their own.
“We are clear that doctors should not withhold information from patients, unless they believe that giving it would cause the patient serious harm.”
Holly Greenbury, who co-founded Intersex UK, a campaign group founded to end stigma around intersex variations and to fight for equality and protection of intersex people, told BBC Radio 4 that some families were still feeling forced to make decisions over surgery in the UK, before children were of an age at which they could make an informed decision and consent themselves.
“What this highlights is that there is a break down of communication, a lack of education and, currently, the UK is not following internal human rights law and ensuring that our legislation protects the future wellbeing and the bodily autonomy of infants and young children.”
