The latest episode of FAB Gab is out now! In this episode, Floor Cuijpers and Petra Verdonk present their work on the ways in which different kinds of marginalisation intersect to influence self-silencing behaviours among clinical trial participants. The trial that Cuijpers and Verdonk look at involves neuromuscular disorders, so they are particularly interested in the ways that disablement intersects with gender and class in different ways.
Here’s a sneak peak:
in this specific trial, these power dynamics manifested in actually participants at times silencing themselves. And this actually led them to or manifested in them overstepping their physical and emotional boundaries at times. And these aspects, we argue, are quite difficult, difficult to capture in more traditional ethical procedures and guidelines.
Floor Cuijpers, in conversation
Check out the episode, and all our other episodes, on Spotify, Apple Podcasts, or here.
FAB Gab is hosted and produced by Kathryn MacKay