Large outbreaks of deadly diseases the “new normal” according to World Health Organization

As the second largest Ebola outbreak rages on in the Democratic Republic of Congo, the World Health Organization warns that large-scale outbreaks of deadly diseases like Ebola may be the new normal.

A Red Cross Safe and Dignified Burial team (SDB) respond to an Ebola alert in the DRC
The Democratic Republic of Congo has seen over 1300 deaths from the current Ebola epidemic. Photo courtesy of BBC news.

The current outbreak in the DRC has seen 2,025 cases of Ebola and 1,357 deaths from the virus, and shows no signs of stopping. Dr Michael Ryan, the executive director of the WHO’s health emergencies program, warns that we are entering a period of high impact epidemics of deadly diseases.

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He said the world is “seeing a very worrying convergence of risks” that are increasing the dangers of diseases including Ebola, cholera and yellow fever.

He said climate change, emerging diseases, exploitation of the rainforest, large and highly mobile populations, weak governments and conflict were making outbreaks more likely to occur and more likely to swell in size once they did.

Dr Ryan said the World Health Organization was tracking 160 disease events around the world and nine were grade three emergencies (the WHO’s highest emergency level).

“I don’t think we’ve ever had a situation where we’re responding to so many emergencies at one time. This is a new normal, I don’t expect the frequency of these events to reduce.”

As a result, he argued that countries and other bodies needed to “get to grips with readiness [and] be ready for these epidemics”.

This frightening prediction is a concern for the biomedical ethical principle of justice, as many countries likely to be affected lack the resources and infrastructure to deal with massive outbreaks. This issue also shows the intersection of climate change and war with human disease control and other health concerns.

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Obstetric Violence in Egypt’s Maternal Health System

Merette Khalil, an Egyptian doula, has spoken out regarding an epidemic of obstetric violence in Egypt’s maternal health system. Khalil cites existing scientific literature which describes obstetric violence as ranging “from the denial of the comfort of a companion of choice, to lack of information about the different procedures performed during care; unnecessary cesarean sections; deprivation of the right to food and walking; routine and repetitive vaginal exams without justification; frequent use of oxytocin to accelerate labor and cutting episiotomies without consent. All these events can ultimately lead to permanent physical, mental and emotional damage.”

Photo courtesy of EgyptianStreets.com

Khalil describes her observations of obstetric violence she has witnessed over the years as a doula.

As a doula, I have witnessed almost all of these examples during births, from pushing hard on mama’s abdomen after the baby is born, to mamas being subjected to unnecessary and unannounced vaginal cuts, to being coerced into epidurals or given medication to accelerate labor, without being informed or consenting.

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Obstetric violence begins with a lack of education. It begins with telling women that their voices do not have weight during their births compared to the voice of a medical professional.

Obstetric violence starts much earlier in Egypt and in the Region, it starts with the rampant female genital mutilation (FGM) of young girls, to the silencing of adolescents about their sexual reproductive health and rights, to a medical system that continues to see pregnant women as “sick patients” who are not able to make decisions and are not entitled to preferences or information.

Violence can be simple acts of coercion and humiliation- being too intimidated to ask a question out of fear of being shamed, dismissed, or being made to feel stupid for not knowing the answer to a medical question as a first-time-pregnant mom. All too often, many mothers don’t know what questions to ask, or how to get access to the information they need; they just listen to their friends’ or their mothers’ experiences or horror stories, praying it will not happen to them.


Khalil goes on regarding Egyptian hospital policies which require women to give birth in operating rooms, laying on their backs to push. Egypt does not use midwives in hospitals, so health care staff are not trained to deliver babies in any laboring position the woman chooses. Doctors often advise women in advance that they can’t handle the pain of labor and recommend epidurals. Not being able to walk or move while laboring leads to an increase in episiotomies, the use of vacuums or forceps, and c-sections. In fact, Egypt has a c-section rate almost 6x higher than the global recommendation

While women’s labor and delivery choices should be respected, it is important for the ethical principle of autonomy that women have full understanding of all their options. They also must be offered the opportunity to labor in different positions and for labor to progress naturally if that is their choice. This is an international problem as women worldwide often feel pressured in their birthing choices.

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World Health Organization no longer recognizing transgender health issues as “disorders”

Big changes to the World Health Organization’s global manual of diagnoses will no longer classify transgender health issues as mental and behavioral disorders. The new version instead discusses issues of “gender incongruence” in a chapter on sexual health.

Picture of person with rainbow decoration on arm
Photo courtesy of BBC news.

In the latest manual, called the ICD-11, gender incongruence is defined as a marked and persistent incongruence between a person’s experienced gender and assigned sex.

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In the previous version – ICD-10 – this was considered a gender identity disorder, in the chapter entitled mental and behavioural disorders.

Dr Lale Say, a reproductive health expert at the World Health Organization, said: “It was taken out from mental health disorders because we had a better understanding that this was not a mental health condition,  and leaving it there was causing stigma.

Bioethics has long debated the concepts of “health” and “disease” or “disorder.” Some argue that health and disease refer to optimal states of biological functioning or deviation from it, while others argue that health and disorder are value-laden concepts that reflect societal values. The previous classification of homosexuality as a disease lends support for the latter view, as does this recent change. Evolving societal acceptance of transgender men and women has led to the decision that gender incongruence should not be considered a disorder.

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Cruel and Inefficient: The Difficulty of Aging and Dying Well in America
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James Sheridan Wood 1931-2019 Died peacefully in hospice May 22, 2019 after a long struggle by his family to get him end-of-life care in the U.S. health care system.

I wish I could write about the spiritual and emotional meaningfulness of being with my father during his last days and weeks on this earth, and maybe some day I will. But frankly that journey was marred by our broken health care system and the dysfunctional way we treat aging in the U.S.

My father had no savings and lived on his meager social security income but was above the Medicaid cut-off because his wife had a very small fund legally designated for her grandchildren from the time they got married. This meant that they could not afford either assisted living or in-home care.

Infographic from Kaiser Family health shows that long-term services and supports are expensive, often exceeding what beneficiaries and their families can afford.  Figures show in a bar graph in clude $91,250 for a nursing facility, $45,760 for a home health aide, and $17,940 for an adult day health care. Figures are for 2015.
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Western University Researchers Release Report Advocating for More “Time to Attach” for People Who Provide Permanency to Children
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EDITOR’S NOTE: This blog entry comes to us from Heather Stewart, M.A. Stewart is a Ph.D. candidate at Western University and is a member of the Time to Attach Research Team. Here, she speaks about the feminist bioethics issue of how family leave affects social and emotional bonding between parents and children, a classic structural issue affecting families and health. Stewart and the Time to Attach project give special attention to the needs of adoptive families. This work, while specific to the Canadian context, has implications for folks in all nations who wish to maintain or advocate for extended parental leave for both biological and adoptive parents.

It is a gross inequity that adoptive parents are not given the same benefits as biological parents. The argument of recovery from birth as a reason for treating biological mothers versus adoptive mothers as “separate but equal” masks a misguided, underlying belief that families built through adoption are less deserving of support. While I understand that women who have biological children need to recover from pregnancy and childbirth as well as bond with their children, adoptive mothers and their children also have unique needs related to adjusting to parenthood and building a strong bond with the child. Though an adoptive mother does not undergo physiological changes and recovery, the addition of a child requires significant emotional and psychological adjustment.

The image shows origami boats in bright colors, washed out with a grey overlay. White words read “Time to Attach. For children in need of parental care. For children who are adopted. For children in customary or kinship care.” The image is a screenshot from the Time to Attach website.

The quote above is taken from the qualitative portion of a recent survey administered by the “Time to Attach” research team,[i] and completed by 974 self-identified adoptive parents, awaiting parents (i.e., people awaiting an adoption they’ve been approved for), kin caregivers (i.e., biological family members who assume responsibility for a child of which they are biological kin), and customary caregivers (i.e., caregivers of First Nations, Inuk or Métis children who are not the children’s biological parents, according to the custom of the child’s band or First Nations, Inuit or Métis community) across Canada.[ii] The goal of the survey was to solicit the voices and input of parents and caregivers who are directly impacted by the current system of parental leave benefits in Canada, and to get a better understanding of their needs and wishes with respect to a potential revision to that system. An analysis of the survey data is part of a larger report, released this month (May 2019) by the Time to Attach team, which is arguing for 15 additional weeks of “attachment benefits” for adoptive parents in Canada[iii] (full report available here).

At present, the parental leave benefits structure in Canada allows both adoptive parents and biological parents to take what are called “parental benefits” for 35-40 weeks (standard benefits) or 61-69 weeks (extended benefits). However, biological parents are also eligible for “maternity benefits,” which give them an additional 15 weeks of paid leave. Our report and broader advocacy seek to call attention to this inequity and ultimately to have it rectified to ensure that the needs of adoptive parents are met to the same degree of those of biological parents.

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International experts call for compulsory measles vaccination
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After using computer modeling to predict how many cases could occur, Italian researchers from the Bruno Kessler Foundation and Bocconi University believe that voluntary vaccination programs will not be sufficient to contain outbreaks in the years to come. Concerns were raised about vaccination rates in advanced countries including the USA, Ireland, Australia, and the UK.

Child getting measles vaccine
Photo courtesy of BBC news.

According to the World Health Organization, 95% vaccination rates are needed to establish herd immunity and prevent a population from a disease. As rates in England have recently fallen to just over 87%, experts argue that the voluntary system needs to be replaced with a compulsory system, although some questioned the effectiveness of compulsory programs.

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Lead researcher Dr Stefano Merler said that the UK and other countries would “strongly benefit” from compulsory vaccinations as it would help them reach herd immunity.
But Prof Adam Finn, of the University of Bristol, said there was no proof of this.
“Mandatory immunisation is certainly one way to try and increase coverage but it’s far from clear how well it works or whether it would work at all in many places.
“If the reasons that the vaccine is not getting into the children relate to easy access, vaccine supply or clarity of information available to parents, then making it compulsory will do nothing to alleviate such obstacles.
“If there is widespread mistrust of authority or of the motivation behind any such requirements, it could actually make things worse.”

While the guiding biomedical ethical principle of autonomy generally warrants that competent patients be allowed to refuse unwanted medical procedures, the issue becomes more complex when such a refusal can result in increased risks to public health. Many argue that patient autonomy can be overridden in such circumstances. An additional concern arises in terms of the principle of justice, as those refusing vaccination live in first world countries with access to medical care. But increased cases of measles can affect those living in poorer countries with less access to medical care and fewer resources to deal with an outbreak.

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Sex-selective abortions may have stopped the birth of 23 million girls since 1970
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A recent large scale analysis of worldwide population data suggests sex-selective abortions have led to at least 23 million fewer girls being born, mainly in China and India. Sons are valued over daughters in many societies, for both social and economic reasons. As fewer children are being born worldwide, there has been an increase in families aborting female fetuses in an effort to have at least one son.

Photo of newborn girls from New Scientist

When examining data from 1970 to 2017 from 202 countries, researchers found excess male births had occurred in some years in Albania, Armenia, Azerbaijan, China, Georgia, Hong Kong, India, South Korea, Montenegro, Taiwan, Tunisia and Vietnam. These trends seem to be reversing, however.

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In every nation except Vietnam, the team found that the skew in sex ratios is returning to normal. This seems to be true even in China, which the analysis says accounts for 51 per cent of the missing female births. In 2005, 118 boys were born in China for every 100 girls, but by 2017 this had dropped to 114. “Whether the downward trend in China continues remains to be seen,” says Chao.

Birth gender ratios have already returned to normal in Georgia, South Korea and Hong Kong. But Chao’s team found that the fall in excess boys in India – which the analysis suggests accounts for 46 per cent of the missing girls – is only slight. With 12 million girls born each year compared with 7 million in China, reducing the rate of sex selection in India is crucial for ending the practice worldwide, says Sabu George of the Centre for Women’s Development Studies in New Delhi.

Whether the trend towards normal continues is yet to be seen. The issue is complex as many parents in countries such as India rely on their adult male sons to support them in their old age. Thus, as is the case with many global bioethics issues, sex-selective abortion is interwoven with structural and economic problems in vulnerable nations.

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IVF clinics targeting and deceiving older women according to UK fertility watchdog

Sally Cheshire, the chairwoman of the Human Fertilisation and Embryology Authority (HFEA), a UK fertility watchdog group, has warned that private IVF clinics are using “selective success rates” to target older women. While the chances of successfully conceiving with IVF are low in general, in women ages 43-44 the procedure only has a 3% success rate, and only a 1% success rate in women over 44.

The watchdog group reported that older women are not being told their realistic chances of success before being sold the treatment. Additionally, some were not being given a realistic cost estimate for all the procedures involved or fully informed of the side effects of the procedures. Some of these women feel desperate to conceive, making them vulnerable to exploitation and more prone to false hope.

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Mrs Cheshire said some parts of the sector were using “blatant” sales tactics to persuade “vulnerable” women to undergo treatment.

The 50-year-old said she had even been offered IVF treatments herself, by staff who were unaware of her role with the regulator, at a visit to a fertility show in Manchester.

“We now see things like ‘guaranteed baby or your money back’,” she told the Telegraph.

Mrs Cheshire also called for the watchdog to be given powers to regulate prices, saying that some private centres were charging up to £20,000 for cycles – four times as much as she said treatments should cost.

She said prices were often inflated by the growing use of “add-on treatments”, such as embryo glue and endometrial scratches, offered by clinics to boost chances of success.


Without being fully informed of the risks, chances of success, and costs, informed consent is not being met for these women, making this an evident violation of the basic biomedical principle of autonomy. The fact that the women being deceived are vulnerable makes the practice even more exploitative.

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“Three person baby” born in Greece

A baby boy has been born in Greece as the result of an experimental form of in-vitro fertilization that uses an egg from the mother, sperm from the father, and another egg from a donor woman. The mitochondria–the small compartments inside almost every cell of the body that convert food to energy– from one donor woman’s egg are transferred into the mother’s egg.

This picture from BBC news shows the IVF process.
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This technique was originally developed to help families affected by deadly mitochondrial disease which can be passed from mother to baby. But some fertility doctors believe the technology could increase the odds of IVF too, although that claim has not been proven. These two different uses– infertility and disease prevention — are arguably ethically different.


Tim Child, from the University of Oxford and the medical director of The Fertility Partnership, said: “I’m concerned that there’s no proven need for the patient to have her genetic material removed from her eggs and transferred into the eggs of a donor.

“The risks of the technique aren’t entirely known, though may be considered acceptable if being used to treat mitochondrial disease, but not in this situation.

“The patient may have conceived even if a further standard IVF cycle had been used.”

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Venezuela in the midst of major health emergency
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A new study from the Johns Hopkins Bloomberg School of Public Health and Human Rights Watch suggests Venezuela is in the midst of a major health emergency. While the crisis began two years after the economic crisis in 2010, it took a sharp turn for the worst in 2017, and the situation is now worse than researchers imagined:


Things are so bad that, according to the report and other sources, patients who go to the hospital need to bring not only their own food but also medical supplies like syringes and scalpels as well as their own soap and water.

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Dr. Paul Spiegel, director of the Johns Hopkins Center for Humanitarian Health and a professor in the Department of International Health at the Bloomberg School, says the situation demands an urgent response from the international community. The guiding biomedical principle of justice also supports immediate international attention to the situation.


Diseases that are preventable with vaccines are making a major comeback throughout the country. Cases of measles and diphtheria, which were rare or nonexistent before the economic crisis, have surged to 9,300 and 2,500 respectively.

Since 2009, confirmed cases of malaria increased from 36,000 to 414,000 in 2017.

The Ministry of Health report from 2017 showed that maternal mortality had shot up by 65 percent in one year — from 456 women who died in 2015 to 756 women in 2016. At the same time, infant mortality rose by 30 percent — from 8,812 children under age 1 dying in 2015 to 11,466 children the following year.

The rate of tuberculosis is the highest it has been in the country in the past four decades, with approximately 13,000 cases in 2017.

New HIV infections and AIDS-related deaths have increased sharply,the researchers write, in large part because the vast majority of HIV-positive Venezuelans no longer have access to antiretroviral medications.

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DRESS CODES
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It’s not only in Afghanistan or the Middle East that dress codes are used to reinforce traditional gender roles and the subjugation of women and girls. 

This recent article in the Washington Post reports on the successful suit of three young plaintiffs against  Charter Day School in North Carolina, which serves kindergarten through the eighth grade and is a tuition-free open-enrollment public school. The girls challenged the school’s requirement that they wear skirts, jumpers, or skorts as part of their school uniforms.  

Note the logo of the Charter Days School: “Excellence Without Excuses.” The language of “no excuses” often indicates that someone is not aware of the ways that universal rules can affect different people differently, and demand more of some than others.

Baker Mitchell, the founder of the Roger Bacon Academy, which runs Charter Day School, defended the code as necessary to “preserve chivalry and respect among young women and men.”   Apparently, he thought that the code would prevent “teen pregnancies” and “casual sex,” while creating a learning environment that “embodied traditional values.” 

In court the school argued that eliminating the “visual cues” of the skirts would undermine respect between the sexes and that the policy was necessary to preserve “order and discipline.” So, one obvious effect of the policy was to teach girls that it is their responsibility not to disturb or provoke boys by dressing inappropriately.  The school seems not to have paid attention to the girls who reported boys looking up their skirts during safety drills that required them to crouch and cover their heads.

U.S. District Court Judge Malcolm Howard, who found the policy unconstitutional, observed that the policy required girls to “pay constant attention to the positioning of their legs during class, distracting them from learning, and has led them to avoid certain activities altogether, such as climbing or playing sports during recess, all for fear of exposing their undergarments and being reprimanded by teachers or teased by boys.” So, the second effect of the policy was to undermine girls’ agency.  Indeed, the only one of the three plaintiffs still attending the school responded to the decision by remarking, “You can really do more in pants than you can in skirts,” she said. “I’m just so happy.”

Unfortunately, this is hardly an isolated incident.  Since 2000, anxiety about the effect of girls’ bodies on boys has spawned a wave of dress codes in U.S. middle schools.  If you’re interested in the issue, I discuss it in Just Life: bioethics and the future of sexual difference, New York: Columbia University Press, 2016, pp. 61-66.

EDITOR’s NOTE: You may also wish to take a look at some of these resources, several of which contain pictures of the kinds of outfits that can get girls sent home from school or forced to wear baggy school-provided t-shirts over their clothes for the rest of the day.

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Bisexual Microaggressions in Medical Contexts
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We recently shared an IJFAB Blog guest blog by Heather Stewart and Lauren Freeman on microaggressions facing transgender folks seeking medical care. In this blog, Heather Stewart focuses on microaggressions facing bisexual persons in medical contexts. Stewart addresses numerous features of how microaggressions can take place when bisexual folks seek medical care, including the well-described phenomenon of “bi erasure.” This piece was first published at the Bisexual Resource Center and is reposted here with the author’s and BRC’s permission.

Bisexual or “bi” identified people are a significant portion of the larger LGBTQ+ community, with studiessuggesting they make up just over half of the larger LBGTQ+ population. Within the bi community itself, there is substantial diversity as well. For example, “bisexual” is the sexual orientation category most self-identified by trans people (25% of trans people identify as bisexual) and people of colour are more likely to identify as bisexual than white people.

Yet, despite representing such a large portion of the LGBTQ+ community, bi people experience routine erasure – they are often lumped in with their gay or lesbian counterparts, or not accounted for at all, and their experiences are often rendered invisible, incomprehensible, and incoherent. Simply put, bisexual people have a difficult time being recognized as bi, and they often have their experiences obscured, questioned, doubted, or dismissed by those around them (including fellow LGBTQ+ community members).

The erasure of bisexual people and their experiences leads to a variety of negative consequences, including lack of social or legal support systems, psychological difficulties pertaining to alienation or lack of belonging, and more. One of the most damaging consequences involves the variety of health disparities experienced by bisexual identified people. Some examples include:

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