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You may have heard of an incident about a week ago in which a young black woman physician was on a plane when a passenger experienced medical distress. She rose to help, and was told by the flight attendant to sit down, essentially because the flight attendant did not believe she was a physician.
Carolyn Y. Johnson, over at the Washington Post, has a fine article on The disturbing reason why we don’t believe young, black women are really doctors. In it, she raises issues of both racial bias and gender bias in our society’s image of physicians. It would make a nice primer for people unfamiliar with these issues.
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How much does our image of what a doctor looks like matter? How much influence does it have on which people pursue a medical career, which medical career they pursue (medicine vs. nursing vs. pharmacy, etc.), which succeed, how likely they are to get hired and at which kinds of institutions? These are non-trivial questions that crop up in an area of medical ethics we don’t often focus on, namely an area that isn’t directly about patients at all but rather about interprofessional relationships.
Dear friends and readers,
I post to offer a brief explanation and apology for the last month and a half of skimpy offerings on this blog. My father had a stroke in February from which he largely recovered, though his underlying Parkinson’s had clearly begun to affect both motor control and cognition. He has been on life support since August when, due to decreased swallowing ability after years of Parkinson’s, he aspirated milk and cookies and developed aspiration pneumonia. He never fully regained consciousness, and had several more strokes which were only detected by imaging. After all, the signs we normally notice for a stroke–speech, loss of motor control on one side, facial expressions changed on one side, etc.–were no longer available for observation. On labor day weekend, we removed him from the ventilator. To everyone’s surprise, he was able to breathe on his own. In a moral move all bioethicists will recognize, his proxy decision-maker saw removal of his feeding tube not as letting-die, but as killing. I understood this. I understand this. Though I disagreed. Instead of our plan to transfer him to hospice, which I had objectively explained to my father’s proxy, he was transferred to long-term care. For whom, by that point, were we making decisions? For my father, the patient, yes. But also now for those who remain, and who must live with their decisions, who must make decisions that are livable.
Wednesday morning, he passed away after a series of increasingly bad outcomes. His proxy said that by the end, it was an unambiguous blessing. For myself, I hope I go sometime after so-much-left-to-live-for and sometime before death-is-an-unambiguous-blessing.
As you can imagine, this has been occupying my time and my thoughts, especially as he lived and was hospitalized across the state from me. I have gone from facing his death, to facing his life, to again facing his death, from grief to half-grief and grief yet again.
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I hope now to restore regular service to the blog. I may occasionally reflect on this experience through a bioethics lens, as myself (Alison Reiheld) rather than as editor. However, for this explanation and apology and notice of restoration to normal function, I wear my Editor hat.
Thank you for bearing with the blog, and for picking up readership again.
IJFAB Blog Editor, Alison Reiheld
Over at Fit is a Feminist Issue this morning, IJFAB blogger Alison Reiheld has a post on gender norms, bacon, and pumpkin spice This puts a stop sign out for seach engines: Don’t follow this link or count the website it links to in your index. levitra vs viagra here are the findings These medical sildenafil cheapest price representatives sometimes offer lucrative offers to the physicians. Finpecia not only prevents hair from falling, but also improves the signal transmission online levitra india between the brain and reproductive health for men who wish to keep full anonymity about their situation. The pump is designed to help increase the blood flow to the penis. viagra online in canada lattes. It might be of some interest to IJFAB folks, as is the Fit is a Feminist Issue blog as a whole.
The American Academy of Pediatrics announced last week that it was radically changing its guidelines for treatment of overweight and obesity in children and teens. Specifically, it recommends DEemphasizing dieting and weight loss while avoiding any kind of public shaming and encouraging families not to engage in fat shaming, and emphasizing exercise and nutrition. Why? Because those first three tactics are correlated with higher rates of obesity and higher rates of eating disorders, while the latter are correlated with actual better health overall. You can find a quite decent summary/explanation of the revisions in this Psychology Today overview by Alexis Conason, a clinical psychologist who specializes in body image and eating disorders.
This is very promising. It was only two years ago that the American Medical Association joined numerous other organizations in defining obesity as a disease and reinforcing a diagnostic and treatment picture of obesity that lends itself to reductivism in how medical professionals and the public deal with obesity. In particular, this Editor recently drew reader’s attention to a very fine Nursing Clio overview of the history of obesity at the pediatrician’s office. Feminist bioethicists have long been concerned about how a toxic braid of stigma, medicine, and parenting motivated by concern for fat kids contributes to body image issues, disordered eating, and poor health rather than good health. This policy may not be perfect, but it is a major improvement in how to actually treat whole persons so that in doing so, medical professionals do not impose additional harms.
IJFAB bloggers and authors in the journal have written critically of the treatment of obesity by professional organizations, and on food and eating more generally. Want to read more? Check these out.
- BLOG: “Body Image, BMI, and the Continuing Problem of the Standards of Beauty” by Ula Klein
- BLOG: “More Fat Shaming” by Patrick Welsh
- BLOG: “Aiming at Body Size: How Medicalizing Obesity Changes the Very Notion of What it is to be Healthy” by Alison Reiheld
- BLOG: “Obesity: Two Articles” by Tim Johnston
- BLOG: “Fat Phobia and Thin Privilege” by Ula Klein
- BLOG: “Not the parity we want: Disordered eating and normative appetites in North American men and women” by Alison Reiheld
- BLOG: “Why so Many Rich Kids Come To Enjoy the Taste of Healthier Foods” by Patrick Welsh
- BLOG: “Eating as Shameful: Food, Gender, Daily Life, and Media Messages” by Alison Reiheld
- BLOG: “Just Modeling?: The Modeling Industry, Eating Disorders, and the Law” by Patrick Welsh
- IJFAB ARTICLE AND SPECIAL ISSUE: Mary Rawlinson’s Introduction to the special issue on Just Food (vol 8 no 2, Fall 2015; link to the entire table of contents by clicking on the special issue title)
- IJFAB ARTICLE: Kathryn Morgan’s 2014 “Foucault, Ugly Ducklings, and Technoswans: Analyzing Fat Hatred, Weight-Loss Surgery, and Compulsory Biomedicalized Aesthetics in America”
- IJFAB ARTICLE: Monique Jonas’s 2015 article “Fair Advice: Discretion, Persuasion, and Standard Setting in Child Nutrition Advice”
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On September 8, 2016, Deloitte LLP announced it would grant 16 weeks of paid leave to employees who provide family caregiving not only to new children, but to older children, parents, and spouses. This is an enormous improvement in the U.S. which has very little national support for paid caregiver leave from paid work outside the home. Many caregiver and maternity leave policies in the US guarantee only that you may have unpaid leave without losing your job, and usually for not more than 8 or 12 weeks, while many other developed nations require much more generous policies administered by the state. The business magazine, Fortune, declared Deloitte’s benefit announcement “the latest in the paid leave arms race.” In America, this is good news. Would that such an arms race could suffice.
In her influential book Justice, Gender, and the Family, Susan Moller Okin wrote about how the structure of the heterosexual family, which assumes that women will do the majority of the caregiving, is a factor taken into account by businesses when hiring men over women and when assuming that employees are men and have a spouse at home to do caregiving, thus making long work hours and unscheduled meetings and overtime demands employers can expect will be met. Okin argued that businesses are thus “free riders” on the work of caregivers, caregivers who are largely women, whose unpaid and uncompensated work makes more paid work hours available for their spouses. Women still work a “second shift” when they come home from paid work.
Without a change in the business world and at home over who does the caregiving and whether employees are supported in their lives outside of work, those who do caregiving will continue to be exploited by our economic system. Perhaps that change is coming. The Deloitte move is certainly the right thing to do relative to little or no paid leave, or paid leave only for new children.
But if it continues to come company by company, it will affect only small chunks of workers and be used in part as a recruiting tool to bring particular types of professionals to particular types of corporations. These benefits will remain off-limits to even salaried workers in different sectors of the economy, and especially to lower-income workers who are seen by their employers as interchangeable with those currently looking for work. According to the US Bureau of Labor & Statistics and other reliable sources, women still tend to work lower-paid jobs than men in the US, with women of color earning even less than white women, overall. Men in lower-paid jobs will not have the flexibility to temporarily leave work to care for their families, and neither will very many women, and especially marginalized men and women. Only a widespread cultural movement or governmental mandate regarding paid leave and other supports for caregivers will ensure that just caring for caregivers is itself justly distributed and available to all.
For more of my thoughts on the North American context for caregiving see:
- my peer-reviewed scholarly article, “Just Caring for Caregivers: What Society and the State Owe to Those Who Render Care” in the open access journal Feminist Philosophy Quarterly
- my scholarly blog entry, “A Zero-Sum Game? A Consideration of Dependency Workers and Dependent Elderly Persons,” at the Canadian blog Impact Ethics, and an earlier U.S.-specific version published here
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Hello, folks. The IJFAB Blog editor is dealing with an impending death in her family, and with all that this requires in terms of compassionate planning leading up to this and afterwards. Alas that a career spent doing bioethics should be of so much urgent personal utility. What a blessing, that one’s work makes difficult parts of one’s life even somewhat easier.
IJFAB bloggers may post their own work, but through September 16, 2016 the Editor will be on a short leave.
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Need some bioethics in the interim? Check out our recent blog entries, visit IJFAB on Muse for current and past issues, or peruse the Stanford Encyclopedia’s very fine entry on Feminist Bioethics authored by FAB’s own Jackie Leach Scully and built on the scaffolding provided by the departed and much missed Anne Donchin.
Epinephrine is a very inexpensive drug that saves your life if you are reeling from the effects of anaphylaxis. I had such an experience just last week. I was applying body lotion that had among its otherwise innocuous ingredients juniper oil. By the time I had finished applying the lotion to my arms and legs, it looked as if I had a severe sunburn. I, realizing what was happening, threw myself into a cold shower and rubbed off as much of the offending lotion as possible. I could feel my lungs tightening, and I knew this was not going to go away. Knowing it was faster for my partner to drive me a mile to the hospital, rather than wait for an ambulance, we dashed off. By the time we arrived at the ER, within 5-10 minutes after applying the lotion, I could barely stand and had to receive triage care, which began in the middle of the hospital hallway. Epinephrine saved my life that day.
I received a script for an EpiPen with my discharge paperwork. My partner went to the pharmacy to pick up the prescription, only to be told that it was being excluded by United Healthcare and the cost would be $644.
I have had prescriptions excluded before. For instance, my nasal spray, Dymista, is not covered and I was told would cost $186, but the two separate generic drugs that make up Dymista are available for $10/drug through my insurance provider. I assumed that maybe something similar was happening with the EpiPen. I inquired whether they covered a generic or another viable alternative, and they said that if the script was written for an EpiPen they could not substitute epinephrine and a syringe; it had to be an auto-delivery mechanism. Furthermore, EpiPen, the representative told me, was coded as an elective “breathing treatment.” The representative went on to say that United does not cover elective therapies; the EpiPen, the rep indicated, was akin to a nose job. Except it wasn’t at all like a nose job because it was a necessary preventative therapy to keep me from dying, not an operation to appease my vanity. Issues with my insurance provider aside, the price of the EpiPen itself was astounding considering that only a few years ago, the same device was well under $100. Continue reading
In recent months there has been a steady uptick in media coverage of trump discussing whether he or his proponents are “crazy”, “insane”, “pathological”, or “diagnosable.” You can find one example here in this Mother Jones article titled “Here is Every Crazy, Insane, Terrible, Genius, Infuriating Thing Donald Trump Did This Year” and another example in the image meme below, the text of which describes the Republican party as filled with people who are “crazy.”
There are many disability critiques of the tendency to use these mental illness terms to describe people whose behavior or values we find to be strange, immoral, or unreasonable. Very few focus on something so simple as the notion that this is offensive to persons with mental illness. Rather, such critiques caution against conflating mental illness with what appears to us to be immorality and/or irrationality. Nice introductions to this critique of “ableism” can be found here and here.
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However, it is worth attending specifically to how these terms are deployed in the current election. David M. Perry considers this phenomenon’s appearance in presidential politics in his blog entry, “Medicalizing Presidential Candidates, past and present.”
[I am talking about] the drive to medicalize Trump’s behavior. The other day I wrote some opening thoughts, along with a storify, on the casual pathologization of Trump’s objectionable behavior. It’s had an afterlife to which I’ll link below. My general thought – we do not need to armchair diagnose Trump to beat him. Leveraging disability stigma to defeat Trump is, at the least, a morally complex choice. I’d like people to think hard before doing it. I won’t be doing it myself.
I suggest you click through to the article. Agree or disagree, it is worth thinking about.
The Spring 2016 issue of IJFAB is now available via Project Muse. It includes an interesting open access paper by Allison Merrick, “A Paradox of Hope? Toward a Feminist Approach to Palliation.” The paradox of hope arises in cases where a patient’s prognosis is very poor. Because physicians have a duty to respect patient autonomy, they should be sure that a patient receives accurate information about their progress. At the same time, however, receiving this information may cause the patient to lose hope, causing their condition to worsen. Thus, providing accurate information seems contrary to the duty of beneficence.
Merrick’s goal in this paper is to undermine this paradox by developing an alternative model of medicine, one that does not focus solely on cure – on “the eradication of the cause of an illness or disease, [or] the radical interruption of and reversal of the natural history of the disorder” (Pellegrino and Thomasma 1997, 27; quoted in Merrick 2016, 112). Instead, she offers a palliative model, informed by feminist scholarship, that understands hope in terms of the patient’s subjective priorities and experiences. Such a model, she claims, “opens up the space for a plurality of values” (112).
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Merrick closes her paper with a discussion of some of the work in feminist bioethics that parallel her ideas and that could be used to further develop her approach to palliation. In particular, she stresses that we must incorporate a relational dimension to palliation, emphasizing the patient’s relationships with their loved ones and also the ways that power structures operate in the healthcare system. I believe that the model she offers is very promising and would love to see further development of a relational approach to palliation. As questions about end-of-life care become more pressing, it becomes increasingly important to develop frameworks that are adequate to the complexity of the decisions that patients, their families, and health care providers will face. A feminist account such as Merrick’s seems to me to be our best hope of doing so.
The excellent medical history and women’s studies blog Nursing Clio is running a series of posts about female presidential candidates. They also recently featured a truly illuminating scholarly blog entry on the history and modern use of obesity and BMI in pediatric settings called “The Problem With Fat-Talk at the Pediatrician’s Office.”
Combined with the fact that some states require “BMI report cards” to be sent home by schools (a practice some argue is necessary for combating obesity but others say pose serious problems and the efficacy of which is unverified), pediatric use of BMI deserves careful attention from those concerned with medical ethics and public health ethics generally, and more specifically with the way that medicalization can reify stigmatized human conditions. This is even more the case than in the adult context given young people’s vulnerability to life-long patterns of body shame and disordered eating.
You may find the Clio blog entry particularly useful in thinking about the use and misuse of these measurements, and why they continue to find traction despite their oversimplification with respect to health. While IJFAB Blog has featured several blog entries on adult clinical uses of obesity and BMI, we don’t have any on pediatric contexts and so commend this to you.
For some of our past entries on adult obesity and BMI, see:
- Obesity: Two Articles (Tim Johnston)
- Fat Phobia and Thin Privilege (Ula Klein)
- Aiming at Body Size: How Medicalizing Obesity Changes the Very Notion of What It Is To Be Healthy (Alison Reiheld)
- Body Image, BMI, and the Continuing Problem of Standards of Beauty (Ula Klein)
- Women and Responsibility for Health: Food, Physical Activity, and Feminism (Alison Reiheld)
- More Fat-Shaming (Pactrick J. Welsh)
- Eating as Shameful: Food, Gender, Daily Life, and Media Messages (Alison Reiheld)
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The American Society for Bioethics and Humanities — one of the largest conferences for all academics, clinicians, policy analysts, and others working in the areas of bioethics, medical humanities, medicine, medical education, and related disciplines — is ready to roll in Washington, D.C, from October 6-9, 2016. Among its many features is the opportunity for Affinity Groups — smaller organizations whose members have a particular clinical, academic, or other kind of focus — to meet, hear each other’s work, and engage in lively discussions, debates, and other activities centered around particular concerns or approaches.
The experiences of participants in such groups tend to bring them back. Because ASBH is such a large, multivocal event, finding oneself in an environment where one is in focused conversations with a small group of like-minded colleagues who share one’s passions and concerns (and sometimes even projects) is not only professionally fruitful and fulfilling, but often just plain fun. As it happens, I am the current organizer of just such a group: Feminist Approaches to Bioethics. And I think that you should submit your abstract for our meeting. Now.
Why Feminist Approaches to Bioethics? If you are reading this blog post, you probably are already somewhat familiar with FAB and IJFAB — so just submit your work already!
If you are new here, first — welcome! We are very happy to have you!
Second, please pardon all the acronyms (ASBH, FAB, IJFAB, and so on).
Third, please consider submitting your work for the following reasons:
- The FAB Affinity Group is a welcoming, exciting, open-minded community of people interested in feminist approaches to medicine and related issues. We WANT to hear your ideas, and we want to engage with them. We don’t bite.
- Among all the general sessions and Affinity Groups at ASBH, we are the only group, focused specifically on feminist perspectives and approaches. If you are, too, then we already speak the same language. This matters!
- Participating in our group is a wonderful networking opportunity — especially for students and junior faculty and researchers. It is also a great place for the more senior members to present work, to mentor younger colleagues — and, of course, to see old friends!
- All we ask for now is 250 words — surely you have a spare few hundred words lying around somewhere!
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FAB AFFINITY GROUP: Call for Abstracts
In an ongoing effort to stimulate scholarship and encourage the growth of the field of feminist bioethics, the FAB Affinity Group would like to invite submissions for the American Society for Bioethics and Humanities (ASBH) 18th Annual Meeting October 6-9, 2016 at the Hyatt Regency Washington on Capitol Hill in Washington, D.C. The theme is open, but should relate to issues within feminist bioethics, broadly construed. Especially encouraged are papers that reflect works in progress, exploring new theoretical approaches to feminist bioethics, or analyzing advances in the biological sciences and medicine using a feminist framework.
Abstracts or proposals (250 words or less) should be emailed to agotlib@brooklyn.cuny.edu by August 1st. Please include your full contact information. All submissions will be reviewed by the FAB Affinity Group committee. Applicants will be notified of the committee’s decision by August 15th.
Please feel free to distribute this invitation as appropriate.
Thank you, and we look forward to seeing you at ASBH in October!